The journey fighting multiple myeloma is challenging, filled with uncertainty, and usually leaves the person diagnosed, and their support group in emotional turmoil. However, Michael Mankowich shares his experience and showcases the power of resilience, community engagement, and the importance of advocating for oneself and others. In this blog post, we will cover Michael's journey, his treatment experiences, and how he has transformed his challenges into a platform for helping others in the multiple myeloma community. If you are interested in watching his interview in video format, please check it out.
Introduction to Michael's Story
Michael Mankowich, graduated from Cornell University, and has been living with multiple myeloma for six years. His story begins with chronic back pain that led him to seek medical attention, ultimately resulting in a diagnosis that would change his life.
Despite the initial shock of learning about multiple myeloma, Michael's perspective shifted when he realized he did not have metastatic cancer. This realization sparked a journey of research, treatment, and advocacy.
The Diagnosis: A Turning Point
Upon receiving his diagnosis, Michael found himself in a state of disbelief. He recalls the moment vividly, sitting at his desk as he processed the information. The initial communication from his doctor included the possibility of either metastatic disease or multiple myeloma. This uncertainty heightened his anxiety, but he was determined to seek answers.
Michael’s proactive approach led him to consult a doctor at Memorial Sloan Kettering, who was instrumental in diagnosing his multiple myeloma. This doctor’s thoroughness and willingness to collaborate with other specialists provided Michael with the reassurance and support he needed during this tumultuous time. One thing you will note about Michael, is he continues to carry an incredibly resilient and strong mentality.
Understanding Treatment Options
Michael's treatment journey began with an induction phase involving a clinical study. He was part of a group that received a combination of medications, including Revlimid (lenalidomide), Velcade (bortezomib), and dexamethasone. Michael’s treatment plan was designed to either prepare patients for a stem cell transplant or to maximize the effectiveness of the induction phase without immediate transplantation.
Through this clinical study, Michael found that the combination of these medications worked effectively for him. He experienced a positive response, achieving minimal residual disease (MRD) negativity, which indicated that no detectable cancer was present in his body. However, the treatment was not without its challenges. He faced side effects, including neuropathy, which affected his daily life.
The Psychological and Physical Impact of Treatment
Throughout his treatment, Michael experienced both physical and psychological effects. The medications, particularly dexamethasone, altered his mood and energy levels. He described feeling irritable and hyper, which had an impact on his relationships, especially with his wife. Open communication became essential, as it allowed them to navigate the emotional landscape of his treatment together.
Michael emphasized the importance of having a support system in place. He found that sharing his experiences with his wife and other caregivers was crucial, as it provided him with different perspectives and emotional relief. His advice to others is to maintain open lines of communication with loved ones during such challenging times.
Engaging with the Community
Michael's journey did not end with his treatment. His experience and desire to give back led him to become actively involved with the Multiple Myeloma Research Foundation (MMRF). Through fundraising events and awareness campaigns, he has raised significant funds for research and support initiatives aimed at improving treatment options for others facing similar battles.
One of Michael's notable adventures was a hiking trek through Patagonia, where he connected with other patients, doctors, and caregivers. This experience highlighted the importance of camaraderie and shared experiences in the face of adversity. Michael's enthusiasm for these events is palpable, as he reflects on the friendships formed and the collective spirit of hope that emerged from these journeys.
Advice for Patients and Caregivers
Michael's experiences have equipped him with valuable insights that he shares with others in the multiple myeloma community. Here are some of his key pieces of advice:
Engage with Others: Michael urges patients to connect with others, whether through support groups, events, or online platforms. Sharing experiences can foster a sense of community and provide emotional relief.
Communicate Openly: Maintaining open communication with caregivers and loved ones is essential. Both patients and caregivers should feel comfortable discussing their feelings and experiences.
Stay Informed: Knowledge is power. Michael encourages patients to research their condition and treatment options but cautions against misinformation. Always consult healthcare professionals for guidance.
Remain Hopeful: The landscape of multiple myeloma treatment is evolving, with new therapies emerging regularly. Michael emphasizes the importance of hope, even in the face of setbacks.
Connect with Other Patients: Patient Connect allows you to meet people near you, and with similar healthcare journeys.
The Future: Hope and Advocacy
As Michael reflects on his journey, he recognizes the importance of resilience and advocacy. He views his experience as a blessing in disguise, providing him with the opportunity to help others. His commitment to raising awareness and funds for multiple myeloma research is a testament to his belief in the power of community and support.
Michael's story is one of hope, demonstrating that even amidst the challenges of a cancer diagnosis, there are opportunities for growth, connection, and advocacy. He encourages others to embrace their journeys, engage with the community, and remain hopeful for the future.
Connect with Michael
For those wanting to reach out to Michael or learn more about his journey, he is open to communication. You can contact him via email to share experiences, seek advice, or simply connect with a fellow warrior in the fight against multiple myeloma.
Michael's journey serves as a powerful reminder that while multiple myeloma may present significant challenges, it can also lead to profound connections and a renewed sense of purpose. His story is a beacon of hope for many navigating the complexities of this disease.
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